Dementia Diagnosis? Steps to Prepare Your Family for Your Dementia Journey

A dementia diagnosis is life-changing, bringing a swell of emotions for both the diagnosed individual and their families. While the journey comes with challenges, creating a supportive environment through preparation and open communication can make a meaningful difference to your care. Let's look at some essential steps you and your family can take to navigate the journey together.

1. Understand Your Diagnosis

When it comes to dementia, knowledge empowers your ability to move forward and set up the support and care you will need. There are multiple types of dementia, so take the time to learn about the specific type with which you're diagnosed. Pay particular attention to the symptoms specific to your health and its usual pattern of progression. 

Everyone must understand what to expect, so encourage family members, caregivers, and friends to educate themselves on what's coming. Resources like the National Institute on Aging and the Alzheimer's Association offer valuable information to prepare for dementia.

2. Tell Your Loved Ones and Prepare for Change

Candid conversations with your family and friends about your dementia diagnosis should begin as early as possible. You'll need to discuss the potential lifestyle changes associated with dementia, your preferences for care as the disease progresses, and the emotional support you and they will need. Find ways to support one another and to work together.

3. Plan for Legal and Financial Matters

Ensure that future decisions reflect your wishes through early legal and financial planning. Engaging an attorney to create or update the following documents is a good idea. 

• Power of Attorney (POA) for financial and healthcare decisions

• Living Will or Advance Healthcare Directive

• Last Will and Testament

• Long-term care insurance policies and/or Medicaid planning

Taking care of these details provides peace of mind.

4. Design Your Care Plan

Proactively planning your care ensures that you've arranged for your daily needs and future changes. Some of the aspects to consider when formulating your care schedule include:

• Designate a primary caregiver or a caregiving team

• Determine which is the better fit: in-home care, assisted living, or a memory care facility

• Decide who is responsible for scheduling medical check-ups and monitoring health status

• Find out if you qualify for Medicaid to pay for a friend or family member to be your caregiver

As your condition progresses, a well-structured care plan will ease the burden on family members and friends.

5. Build a Support System

Dementia impacts the entire family, not just the individual. A solid support system is vital to the well-being of family and friends. Prepare for what's to come by seeking local or online support groups for caregivers and individuals with dementia. Your 'village or community' can find emotional support, practical advice, and care by connecting with others facing similar challenges.

6. Take Care of Yourself

Remember to prioritize your physical and mental well-being through self-care. Involve yourself in activities that bring you joy, such as gardening, exercise, playing music, or spending time with loved ones. Ease stress with mindfulness, relaxation techniques, and social interaction to boost natural endorphins that reduce pain.

A dementia diagnosis doesn't mean losing the ability to set plans in place. While you're able to make decisions and take proactive steps, you and your family can make this journey with understanding, preparedness, and compassion. Open communication, proper planning, and a strong support network are the building blocks for a fulfilling, dignified life and conquering the challenges ahead.